Milestones

Yesterday marked the 3rd week of being home! It is so nice to be here amongst the chaos. :) This is the longest we have been home since January. Ahhh. No more docs waking us up at 5 or 6 am. I have a huge grin on my face. JD and everyone else does too. The outpouring of love and support is so amazing to us. People are always so thoughtful and we are still receiving things for JD. A sister in our ward made some big dogs from a patchwork material and a quilt. It is so sweet, the things people do for us and especially JD. My BFF Kelly did a fundraiser for us and she raised $1010.oo!! We are very blessed. I am speechless. Strangers have just poured out their hearts and donated and done anything they can. THANK YOU Kel. I love you. My dear friend Amanda, even though she has struggled herself this year; has been there helping every step and stumble of the way. She had her baby about 3 months early and she had to keep him in her bedroom for 3 months without even her other kids holding him. She had a hard labor and delivery, very hard; and she still was asking me how she could help. She was keeping up a blog, We Love JD. So that people could get updated with info. She brought dinners, gifts for JD, cards, etc.... Then to top it all off, during her trials of having her new baby get surgery for a double hernia- she puts together info and sends it to a local company to get fundraising set up for our family to go to Legoland! That is JD's wish. So the Wade Foundation will be setting up some fundraisers to raise enough money for us all to go to Legoland. THANKS Amanda. I don't know how you are able to do all that you do. You are amazing. JD has his PICC line he gets his antibiotics every 8 hours. So when he is off of the antibiotics is when I will be more of a worry wart. He has a check-up on the 23rd of this month. They will do another MRI and the ID docs will decide what to do next medication wise. He will probably do an oral antibiotic for a while rather than just stop. The day before his last day of school, JD got a fever and rash all over his stomach, back, legs and arms. He slept it off with Tylenol and they ended up switching his meds. He got two more rashes with this new medicine, but not for over a week now. Thank goodness! I don't know what that was all about, just glad he isn't getting rashes anymore. He is starting to see a therapist. He does really well. He is so strong and brave. I am very proud of him. Proud of my other 2 kids too. It has taken a toll on the whole family. The youngest are having a hard time with listening and minding, but we are trying to get that under control. They just have different personalities than JD. The other morning, Jordan was sitting on the couch with an old cell phone. I didn't even know he was awake. I asked who he was talking to, and he answered, "Michael Jackson." I laughed and said that's cool! He said Michael was in our house on a motorcycle. Come to find out he has a motorcycle with a guy on it and for some reason he thinks it looks like Michael Jackson. He is such a funny kid. He is always making us laugh. He looks so old with his haircut too. I cut it into a faux-hawk and he likes it. Jordan had SafetyTown last week and this week and today was finally the first time he didn't cry and I left him without him clinging to my leg with desperation. YAY! Of course it was the last day. His graduation is tomorrow. He gets anxiety. I was going crazy. I was ready to quit taking him and say FORGET IT. Now the one day of him going by himself and not crying made it all worth it. Taylor has switched from daddy's girl to mommy's princess. She LOVES me. Daddy tells her she is so pretty and she grunts and comes to me for a hug. LOL I love that stinkin cute lil girl. She can be a brat, but I will always love her no matter what. I am in Young Women's now and I love it. The girls are so excited and it helps me to want to be a better example. I am so very blessed. We live in a wonderful place full of amazing people who are like family. Our trials have made us stronger. I am grateful for that. The sweetheart that JD is always prays that nobody will be sick and that those that are will get better. He knows it isn't fun and doesn't want anybody to have to be sick! He will grow up and help others in some huge way, I should say while growing up too. He is already a great strength and example to others around him at such a young age!